{"language":"en","basics":{"language":"en","title":"Can you help make a difference? To help safe a life?","description":"

Our son Ben suffers Epilepsy along with a rare genetic disorder called 22q11.2 so we have just discovered due to genetic testing. In 2011 there was just over 50 people worldwide who was reported to have this condition. Many people could have it but don't present until symptomatic. But enough about that onto our fundraising efforts.

We are desperately raising funds a seizure dog. A seizure dog will be able to detect the chemical change within Ben's body. (To find out more about how a seizure dog works, you google Colt the seizure dog) Ben suffers from Tonic Clonic and Absent seizures. The biggest concern is the absent seizures as he is having so many thru out the day and if you blink you miss them. They are basically undetectable to a human. You can be standing right next to him and you will miss them. There is nothing anywhere in the world currently that has been made to detect this kind of seizure activity. Scary when you think about the amount of money the drug companies spend on R&D.

Our biggest fear as parents is when we kiss Ben good night will it be the last time? More people die from SUDEP (sudden unexplained death in epilepsy patients) than in house fires every year. Scary thought isnt it?

Every dollar raised is going to Radar, that name Ben has chosen for his side kick. Very appropriate name for a seizure dog when you think about. If by some chance we are luck enough to raise more than we need. Which we would be mind blowing we will pay it forward and help some other family achieve there goal. As some many people would benefit from having a seizure dog but the cost is unachievable.

https://www.perthnow.com.au/news/medicine/the-dog-that-could-keep-perth-boy-ben-williams-alive-ng-b881055713z

Thank you for your time.

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Thank you so much for taking time out of your busy lives to read our campaign. Time is one of the most important things in the world and usually the thing taken for granted the most. It is the one thing that measure by seconds and minutes as everything is measured so we can record it and tell Doctors how long a seizure was so we can keep records of it.

Epilepsy is something to be embraced not something to be scared off.

May your day be amazing.

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